Browsing College of Health and Human Performance by Author "Seay, Kaitlyn A"
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Maternal Experience of Family-Centered Care and Parenting Their Child with Down syndrome and Congenital Heart Defect
Seay, Kaitlyn A (East Carolina University, 2019-12-10)Approximately half of children with Down syndrome are born with a congenital heart defect (CHD). There is limited empirical research exploring parental perspective or experience of children with both Down syndrome and CHD ...