The Clinical, Operational, and Financial Worlds of Neonatal Palliative Care : An Ethnographic Investigation

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dc.contributor.advisorLamson, Angela L.en_US
dc.contributor.authorWilliams Reade, Jackieen_US
dc.contributor.departmentChild Development and Family Relationsen_US
dc.date.accessioned2011-06-24T15:34:53Z
dc.date.available2012-05-31T12:52:57Z
dc.date.issued2011en_US
dc.description.abstractIn this focused ethnography the researcher sought to gain a multidisciplinary perspective on the cultural context of neonatal palliative care, including Peek's three world view of clinical, operational, and financial elements that impacted such care. The perspectives of thirty-six health-related professionals (pediatric clinical, allied health, financial, and operational staff) informed the identification of institutional cultural issues that affected the provision of neonatal palliative care at a tertiary care regional medical center. The researcher conducted semi-structured interviews that explored the personal and professional experiences of study participants related to the care of dying neonates in general and the planning of a formal neonatal palliative care program in particular. Study findings revealed that participants experienced a tension between balancing intense emotional responses to caring for dying infants and their desire to be competent and compassionate care and service providers. Their experiences are influenced by the relationships with the patients, colleagues on their healthcare team, and contextual factors present in their medical institution.  en_US
dc.description.degreePh.D.en_US
dc.format.extent161 p.en_US
dc.format.mediumdissertations, academicen_US
dc.identifier.urihttp://hdl.handle.net/10342/3593
dc.language.isoen_US
dc.publisherEast Carolina Universityen_US
dc.subjectBehavioral sciencesen_US
dc.subjectEthnographyen_US
dc.subjectInstitutional cultureen_US
dc.subjectNeonatalen_US
dc.subjectPalliativeen_US
dc.subjectPediatricsen_US
dc.subject.lcshTerminally ill children
dc.subject.lcshMedical personnel--Attitudes
dc.subject.lcshTerminal care
dc.subject.lcshPalliative treatment
dc.subject.lcshNewborn infants--Medical care
dc.titleThe Clinical, Operational, and Financial Worlds of Neonatal Palliative Care : An Ethnographic Investigationen_US
dc.typeDoctoral Dissertationen_US

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