Creation of a Support Group for Ruptured Brain Aneurysm, Arteriovenous Malformation, and Hemorrhagic Stroke

Abstract

Hemorrhagic strokes, which also consist of ruptured brain aneurysms and arteriovenous malformations, carry a higher risk of physical and cognitive disabilities than ischemic strokes. Survivors will most likely suffer challenges that include social isolation, depression, medical complications, and secondary stroke prevention. Navigating life after an event can be burdensome for the survivor, family, and caregivers by placing new responsibilities and strains within the relationship. Enhancing social networking and support through community-based support groups can be an effective way to improve recovery and the health and well-being of survivors and caregivers. Before implementing this project, there were no support groups available for this population within central North Carolina. Limited financial and human resources within the community have made improving community outreach to this population difficult. To address the community's lack of support, a support group was created to empower survivors and their caregivers by providing an outlet to obtain appropriate support, education, and socialization. Through gaining necessary support and socialization, better outcomes will be achieved, and the community could see an improvement in patient satisfaction, decreased readmission rates, and fewer reoccurrences. Through evaluating the program, it was found that having an engaged multidisciplinary planning team as well as organizational and leadership buy-in and support were essential to success. A broad and varied recruitment strategy should be used and implemented as early as possible. Social media can help build relationships and promote socialization among participants in an online environment.