The Impact of a Cancer Diagnosis on the Adolescent and Young Adult Experience

Abstract

Adolescence and young adulthood are periods marked by significant physical, emotional, and social development. A cancer diagnosis during this time can disrupt normal developmental milestones, forcing individuals to face unique challenges, such as missed school or workdays, discontinued sports and social activities, symptom burden from illness or treatment, and navigating the emotional toll of social isolation and uncertainty about the future. This study aims to explore the illness experience of adolescents and young adults (AYAs) with cancer to identify common challenges and develop resources to support this vulnerable population. This study consisted of a comprehensive literature review followed by qualitative interviews with AYAs diagnosed with cancer during this critical life stage. Two interviews were conducted with participants who had a cancer diagnosis and were treated between the ages of 18-35 years old. The interviews explored the impact of their diagnosis on education, relationships, and overall quality of life, while also identifying any interventions that proved beneficial to the participants. Analysis of the literature and interview data reveals that many AYAs undergoing treatment had similar experiences of feeling isolated or a lack of belonging. Not fitting in with adult or pediatric populations, often leaves AYAs feeling out of place, struggling to find peers who can understand their unique circumstances. Key themes that emerged include navigating uncertainty, demonstrating resilience, and the importance of community and support systems. By exploring the unique needs of this often-overlooked population, this study aims to promote a deeper understanding of the cancer of AYAs. Insights from this research will guide healthcare professionals in creating interventions to improve outcomes and provide support for AYAs through their cancer diagnosis.