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    Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance

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    Author
    Hazelton, Anthony Garrett; Al-Khatib, Sana M.; Fonarow, Gregg C.; Thomas, Kevin L.; Hayes, David; Sanders, Gillian D.; Campbell, Susan M.; Yancy, Clyde; Peterson, Eric D.; Sears, Samuel
    Abstract
    Background Conveying contemporary treatment options for those at risk of sudden cardiac arrest (SCA) is challenging. The purpose of the present research was to evaluate the quality and usability of available patient educational tools relevant to SCA and its treatment options, such as implantable cardioverter defibrillators (ICDs). We hypothesized that this review would identify gaps in areas of information for the enhancement of patient education and decision-making materials. Methods We used a formal instrument to assess specific domains of content, development, and effectiveness of 18 available SCA and ICD educational tools. The multidisciplinary review panel included two electrophysiologists, two general cardiologists, a cardiac psychologist, a health services researcher, and a patient advocate. Results Of the 18 education tools, four were rated as “good, may need revisions, but sufficient for use”, 12 were rated as “marginal, needs revision prior to use”, and two were rated as “poor, inadequate for use”. None of the tools were rated as being of “very good” or “excellent” quality. Conclusion There appear to be opportunities to improve the quality and completeness of existing educational tools for patients with SCA and ICD. While many tools have been developed, they fall below current standards for supporting informed medical decision-making.
    URI
    http://hdl.handle.net/10342/5806
    Subject
     decision-making; implantable cardioverter defibrillators; patient-centered outcomes research 
    Date
    2013
    Citation:
    APA:
    Hazelton, Anthony Garrett, & Al-Khatib, Sana M., & Fonarow, Gregg C., & Thomas, Kevin L., & Hayes, David, & Sanders, Gillian D., & Campbell, Susan M., & Yancy, Clyde, & Peterson, Eric D., & Sears, Samuel. (January 2013). Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance. Patient preference and adherence, (361-368. Retrieved from http://hdl.handle.net/10342/5806

    Display/Hide MLA, Chicago and APA citation formats.

    MLA:
    Hazelton, Anthony Garrett, and Al-Khatib, Sana M., and Fonarow, Gregg C., and Thomas, Kevin L., and Hayes, David, and Sanders, Gillian D., and Campbell, Susan M., and Yancy, Clyde, and Peterson, Eric D., and Sears, Samuel. "Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance". Patient preference and adherence. . (361-368.), January 2013. February 26, 2021. http://hdl.handle.net/10342/5806.
    Chicago:
    Hazelton, Anthony Garrett and Al-Khatib, Sana M. and Fonarow, Gregg C. and Thomas, Kevin L. and Hayes, David and Sanders, Gillian D. and Campbell, Susan M. and Yancy, Clyde and Peterson, Eric D. and Sears, Samuel, "Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance," Patient preference and adherence 7, no. (January 2013), http://hdl.handle.net/10342/5806 (accessed February 26, 2021).
    AMA:
    Hazelton, Anthony Garrett, Al-Khatib, Sana M., Fonarow, Gregg C., Thomas, Kevin L., Hayes, David, Sanders, Gillian D., Campbell, Susan M., Yancy, Clyde, Peterson, Eric D., Sears, Samuel. Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance. Patient preference and adherence. January 2013; 7() 361-368. http://hdl.handle.net/10342/5806. Accessed February 26, 2021.
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